A Town of Bandits: Tombstone never looked like this. Wyatt Earp would have gone crazy. The line in front of King Kullen in Bridgehampton, NY and countless other supermarkets in the country are full of people wearing masks, bandanas of every color and stripe, waiting on line (6 feet apart) to swipe that Lysol spray. They are on line (6 feet apart) to get that last roll of toilet tissue in aisle 9, on the left behind the Bounty. “I refuse to use the Bounty to wipe my As…….. Too rough on the butt, but plenty absorbent!”
The Bandits are on the loose! From Montauk to Flatbush, from Sag Harbor to Bed-Stuy, the Bandits are everywhere. Who would have thought? You can’t tell the good guys from the bad. “Oh look at that bad desperado over there in the shadows, leaning over to the side, with that slow purposeful walk; slight glint in their eye. They are heading right toward me. I’m getting scared now. Of course they have a mask on, hiding their face. What am I to do? Nowhere to run or hide. Here they come, reaching in their pocket, taking out a…. set of glasses…. oh she’s smiling….it’s Grandma. Damn I feel foolish now. I guess I’ll just have to trust my neighbors more”. There are some bad people in the world but overwhelmingly good people are around us. Just look at the heroes in every Hospital, Nursing Home and providing Home Care services. The GOOD GUYS are fighting the good fight and will win this war!
Photo credit: Hamptons Mouthpiece
We are all Bandits now. No time to look at each other with jaundice eye. Our plight is the same. Social distancing in an age of disease with imposing names, SARS, Corona Virus, Covid-19 or as it is known in the inner city….”The ‘Rona.” We are ALL IN THIS TOGETHER! We are all Bandits now, faced with the same circumstance, forcing us apart but bringing us together like never before.
I was taken aback the other day when I was getting ready to order door front service from a local store in Southampton in an effort to support a local business. I witnessed multiple people going into the store, opening the closed door with their bare hands; no gloves on, no masks on (hey businesses, leave your doors open when possible to prevent the spread of virus on door handles). I left the store not ordering anything knowing that it was a risk. EVERYONE has to take this seriously, accept their responsibility for each other’s health; this is about life and death.
Photo credit: Cindy Warne (made by Cindy Warne)
To all my fellow Bandits, please continue to wear your masks, wear your gloves, wash your hands, wash your hands, wash your hands! Let’s #flattenthecurve. Practice social distancing, keep in touch with the elderly shut-ins, call a friend, ZOOM videoconference with the proper safety and privacy features enabled to stay connected.
Wellness: I am feeling so very blessed and I wanted to share my story. Two years ago I had the scare of my life and I am so very grateful to be a survivor. April 20th, 2018, I woke up and something looked wrong with my face, my left eye was tearing and I had no idea what was happening but my husband said let’s go see the doctor. It was my oldest daughter’s last day living at home and her last day at her job in East Hampton, she was moving on with her life and would be starting a new job in NYC. I said let’s go to SagTown in Sag Harbor to get some coffee. Kurt my husband had taken the day off to go to the doctor with me because I was nervous, we ordered our coffee then in a matter of seconds things were progressively moving quickly. I went to the bathroom to look at my eye and when I looked up my face had drooped more, I was immediately nervous. I told Kurt I am very concerned, so he said I will drop Dani off at work and you go pick up the eyedrops, he said we would leave my car in town and he would drive me to my doctor’s office. I went to pick up the drops and came back to my car to put the drops in my eye and wait for Kurt to come back. Kurt called me to make sure I was ok and all of sudden I could not speak, it was terrifying, I honestly did not know what was happening. I heard a tap on the window of my car, I rolled down the window and there was an officer asking me if I was ok. I was at this time unable to speak and became very agitated because I did not know that Kurt had sent them to find me. The officer proceeded to ask me questions and because I was unable to find my voice he became concerned, took my car keys, and called for an ambulance. As you can probably imagine he thought I was having a stroke and there was a small window to rush me to the hospital to minimize the symptoms if this were a stroke. I was very scared, I had never heard of Bell’s Palsy but I did not think I was having a stroke because my parents and grandmother had all had strokes within the last 3 years and I knew the symptoms.
Once I arrived at Southampton Hospital the staff was very attentive and proceeded to do all the necessary tests to rule out a stroke, once they ruled out that I was not having a stroke they then proceeded to assume I was having some mental issues because they could not understand why I was unable to speak. They kept me in the hospital overnight for observation and in the morning a very nice doctor came in and diagnosed me with Bell’s Palsy. He explained what was happening and prescribed anti-inflammatory medication prednisone to help reduce the swelling of the facial nerve. I was released from the hospital later that morning, once I got home I was completely exhausted and just went to sleep for the rest of the day.
What is Bell’s Palsy?
What is Bell’s Palsy: Google definition “Bell’s palsy is a condition in which the muscles on one side of your face become weak or paralyzed. It affects only one side of the face at a time, causing it to droop or become stiff on that side. It’s caused by some kind of trauma to the seventh cranial nerve. This is also called the “facial nerve.”
The recovery was hard, but I was so grateful that it was not a stroke, I was able to care for myself, go to the bathroom on my own, I believe my positive energy is what helped with my recovery. Many say that one gets Bell’s Palsy from Lyme Disease, but for me, I think my Bell’s Palsy was activated by stress. Prior to my illness, I suffered the immeasurable loss of both my mother and grandmother, information that was gut-wrenching was shared with me and it took months to absorb and heal from it. I found myself in the position of being the Matriarch of the family and I felt I had no time to break-down I needed to show strength and so I think all of that bottled up stress needed to be released.
During my recovery it was hard to do many things, eating, drinking, swallowing, talking, smiling, closing my eye, sleeping. My left eye did not close, so I was very tired because when your eye does not blink it can be very exhausting. It was challenging driving, watching television, or being on the computer for an extended period of time. I had to change my daily way of doing things. I went back to work after being home for a couple of days, it was a challenge because I felt all eyes starring at me, but after watching my parents and my grandmother suffered a stroke, I felt like God had spared my life and I did not focus on anyone staring at me. I focused on recovery. After the 1st day, everyone stopped starring it was back to normal. I continued to stay focused and positive on my recovery over the next month. I shut down my computer, television, and phone at 9 pm every night. I researched what I should eat, what I should not eat, and what I needed to do to recover in 4-8 weeks. I avoided foods that contained, Arginine-Rich Foods, Omega-6 Foods, and Trans Fats. This website helped me https://www.livestrong.com/article/352853-foods-to-avoid-when-you-have-bells-palsy/.
I cannot tell you if that helped, but for me, I was going to take all advice because I was determined to get better. I slept with an eyepatch, it was very helpful, I drank from a straw because drinking from a cup was very hard, 1/2 of my face was paralyzed, I ate soft food because swallowing was a challenge. As my face began to slowly recover it was painful and sleeping at night was a challenge, sometimes I would need to take an Advil to get some sleep. Talking was definitely the hardest part, if I spoke slow I was ok but if I got agitated with someone who I felt could not understand me, my speech would get worst. At that moment I felt the agony of a stroke victim, it humbled me and I would not allow myself to feel sorry for myself. I began to see the progression in four weeks and someone who just met me for the first time would never know a month earlier I had partial facial paralysis; it was able to eat real food, swallow, talk, partial smile. In 2 months I was able to smile, it took a bit longer for my left eye to close completely, washing my face with soap was always a real challenge.
It has been 2 years
It has been 2 years and I still have some residual of my Bell’s Palsy, my left eye twitches and I never feel like it is fully closed, the cemetery of my face is slightly off, but only I notice it and my smile is slightly crooked, but I’ll take it because some never recover. I was one of the lucky survivors and I never stop thanking God for blessing my life. I share my story because I have discovered this happens to many people of all ages all the time.
I wanted someone who might be going through this condition to know that there is hope and you can recover. Be positive, be patient, and be grateful. Don’t let your physical appearance define who you are, focus on recovering and not your vanity. I had an opportunity to interview a doctor who specializes in treating patients who don’t organically recover from Bell’s Palsy, in my part two of this series Recovering from Bell’s Palsy I will share that interview.
Wash your hands, wash your hands, wash your hands!!!DO NOT place your hands to your mouth, nose, eyes and in your ear. These are all PORTALS OF ENTRY for the Covid-19 virus to gain entry to your body and cause infection. Any discussion about the danger of the Covid-19 virus must be first started by indicating that the best way to help arrest the spread of this pathogen is to insist that you wash your hands, use a lot of friction, wash up to your wrists, remove all your jewelry, wash your hands for no less than 20 seconds, force your fingertips into the palm of your hand to clean under your fingernails, use friction when washing between your fingers and then repeat this ritual multiple times a day. Do not get bored practicing this exercise in survival. It is important to note that the use of an alcohol based hand sanitizer is no substitute for hand washing; it is only a stopgap measure when you don’t have the ability to wash your hands thoroughly. Insist that visitors to your home or business first wash their hands when they enter your home. It’s OK to ask. You are not being rude, quite the contrary. You are showing the utmost respect as a host showing your concern for you company’s or customer’s wellbeing.
Normal practices are going to vanish for a while. DON’T shake hands when greeting someone. Respectfully decline and instead touch elbows or nod your head. These are challenging times and we must collectively meet the challenge of this danger among us. This is not the time to panic. It is never a time to panic. It is a time for effective, collective action. Take the time to show your kids how to wash their hands and make it a ritual. Kids respond to rituals and they like to follow the leader. Make it a game of who can wash their hands more. Tell them to keep count on the amounts of times they have washed their hands during the day and see who can ‘win’ the count. Let your young kids see you rush to the bathroom to be ‘first’ to wash your hands when you get home from school pick-up, a visit to Grandma and Pop-Pop (please wash your hands when entering any elder’s home. This virus is disproportionately impacting the elderly, especially with those who have underlying chronic diseases such as diabetes or hypertension). Your kids will run to beat you every day. Start this at the earliest time that your youngster can understand the need to wash their hands (3 years old).
When putting gas in your car, wear a glove. Wear a glove when placing your credit card in the slot, there are germs there. Wear a glove when handling the spigot putting gas in your car. Carefully take off the glove when entering the car without touching anything then before you touch your steering wheel, sanitize your hand. Yeah, I know…that’s a lot of steps, but once you get used to it, this becomes second nature. Just remember that viruses can live on surfaces for a long time and the amount of time this virus can exist on a surface is undetermined. Remember, THINGS HAVE CHANGED!!!
Businesses on Main Street, restaurants, grocery stores should make their bathrooms available for hand washing and stock the bathroom with soap and paper towels. Write this expense into your budgets and manage the bathrooms well. Businesses should schedule times during the day that they will clean the doorknobs leading to their store. Door knobs and handles harbor a vast among of germs and keeping this clean will go a long way to protecting your customers and staff. A simple solution of 1 part bleach to 10 parts water will suffice. Wash your hands after cleaning these surfaces.
If you have counters in your business, similarly clean these surfaces on a routine schedule. No less than once every ½ hour if it is a busy day. If, available provide a ‘Purell/ hand sanitizer station at the store entrance. You can gently ask customers to use the sanitizer upon entering your shop. If every store does this, it will become customary and not seen as an imposition. Normal Operating Procedure. We can do this.
Now for the virus. High fever, Shortness of Breath (SOB), difficulty breathing, coughing and cold symptoms, feeling like crap are hallmarks of this disease. See you doctor. If you cough or sneeze, please do so in the crook of your elbow or in a tissue that should be disposed of in the trash. Wash or sanitize your hands. Covid-19 is called a droplet infection and is carried primarily by germs in the droplets you sneeze or cough out. If you are symptomatic, it does not mean definitively that you have the infection but out of caution you could wear a surgical mask. For the uninitiated, regular surgical masks will NOT protect you FROM the illness but should be used by those who are symptomatic to reduce the amount of infection spread. Over -The Counter (OTC) N-95 designated masks will provide some protection against infection but these are not ‘Fit-Tested’ which means these masks are not specifically molded to your face so there still remains some risk for illness while wearing these OTC N-95 designated masks. Save your money! Self quarantine/isolation is not always practical but may be necessary in your own home to prevent the spread of this illness before seeing a doctor.
This is a PANDEMIC. Pandemics unfortunately have histories of coming in waves. During the Spanish Flu of 1917-1918, there was a first wave of illness, then it subsided, making everyone think that things were improving, but the virus mutated and came back more dangerous and deadly on the second wave. We must be cautious and vigilant. Be consistent in your approach to addressing this disease. Good consistent hand washing will go a long way to keeping you and your family and community healthy. This is by no means a complete list of things to do to protect you and your family and community but it will give you a start on how to think about this illness and our response to it.
Stay safe!!!
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Ask Kurt, Home Care 101: How to cope with Sundowning
Ask Kurt: Is a new column by Professional Homecare expert Kurt Leggard, a registered Nurse Chief Clinical Officer -Director of Patient Services for a Licensed Home Care Services Agency in NYS. Each week Kurt will be answering your questions regarding Home Care.
Home care, is supportive care provided in the home. Teamed with physical alterations to the home such as having mobility wet rooms fitted, it’s a great way to allow your dependent relatives to stay in the comfort of their own home while still getting the help they need. Care may be provided by licensed healthcare professionals who provide medical care needs or by professional caregivers who provide daily care to help to ensure the activities of daily living(ADL’s) are met. Also, very similar to RIGHT ACCORD HOME HEALTH CARE, In-home medical care is often and more accurately referred to as “home health care” or formal care. If you’re looking for an elderly care facility, The Hermitage of Northern Virginia has very nice assisted living facilities in Alexandria VA.
This weeks question is from Stephanie in Sag Harbor, NY
Question: My question is this: What do you recommend to cope with “sundowning” , a condition of extreme irritability of older people between 5pm and 7pm…hard time for caregivers to handle.
ASK KURT:
Kurt: Thank you for the question Stephanie. As defined, ‘Sundowning’ is characterized as a spectrum of behaviors of individuals with a diagnosis of Instant Coupons!Alzheimer’s Disease or other dementias with the individual presenting as agitated, extremely confused and sometimes combative beginning toward the end of the afternoon to early evening sometimes extending through the entire night. Basically, when the sun goes down.
I tend to begin any recommendations with addressing ‘Sundowning’ as a condition that is very stressful for the caregiver as well as a potential safety risk for the sufferer. It is imperative that the caregiver takes care of their own health care and emotional needs and gets appropriate rest and respite to handle the rigors of caring for the individual suffering with ‘Sundowning.’ Please get support if you can. Companies can Immanuel can provide lakeside assisted living to help reduce the physical and emotional load.
The immediate things you can do for the sufferer is to ensure that a recent medical examination has been conducted to determine if there are any medical conditions that may be the underlying cause for the ‘Sundowning.’ If an individual is in pain, this may cause ‘Sundowning’ to start or become more pronounced as will severe constipation, Urinary Track Infections, poor nutrition, dehydration and many other conditions.
If the sufferer tends to wander (a possible secondary affect), it is very important to conduct a complete environmental review of the client’s home. Remove safety hazards (loose carpets or rugs, telephone or lamp wires, use night lights, etc) to prevent falls. If the client is at risk for wandering out of the home, safety door locks should be installed out of the reach of the client but easily accessible to the caregiver. Visible signs inside and outside of the door to identify where the lock is located can be helpful if there is a need for an emergency evacuation, as in the case of fire.
There is nothing more frightening than a love-one wandering outside and lost. Safety locks can prevent this. Do not lock a sufferer indoors without appropriate supervision. If a lock is needed, then there is a great chance that ongoing supervision is indicated (consider the many Homecare options available but be cautious to consider caregiver compatibility and costs).
The following are my recommended interventions: Maintain a routine for the sufferer. Stress will exacerbate ‘Sundowning’ and routines reduce stress. Maintain or increase the activity status of the sufferer during the day and avoid naps if possible. Naps can tend to disrupt the clients nighttime sleeping pattern. As the sun light in the sufferer’s home decreases through the afternoon to the evening, increase the amount of lighting used in the home. The use of lights will reduce one of the triggers of ‘Sundowning.’ Reduce foods that have caffeine and sugar during dinner and snacks. Keep snacks light prior to going to sleep. Ensure that the sufferer has had adequate hydration during the day (the elderly are prone toward dehydration) but reduce fluids at night to minimize nighttime urination (nocturia). Minimize disturbances during the night This seems pretty reasonable but is sometimes difficult to manage, depending on outside traffic, neighbors, etc.
I read in Healthline.com (http://www.healthline.com/ ) that each sufferer has triggers that lead to ‘Sundowning’ and they recommend keeping a journal, recording all triggers to be avoided. Great recommendation!
A final or perhaps initial intervention may be to medicate the sufferer based upon their symptoms and behaviors. Interestingly, some medications may themselves be the cause (trigger) for what appears to be ‘Sundowning’ but may actually be causing medically induced insomnia and confusion. Review all medications the sufferer is taking with their physician or nurse practitioner to determine if medication may be the cause of the problem.
Ultimately, this is a very difficult and challenging circumstance for caregivers to handle. It can be very exhausting and frustrating for everyone involved. A combination of the recommendations offered will hopefully provide some answers and work for you. Get plenty of rest and support if possible. (please review Web MD (http://www.webmd.com) and the Alzheimer’s Association ( http://www.alz.org/nyc/ ) for excellent information.
Each week I will be answering your Home Care Questions: Email your questions to [email protected]
